FDA dragging feet while children with muscular dystrophy are denied promising new treatment

Absolute power. And the arrogance to use it.


If you've ever known a family touched by muscular dystrophy, you know what an agonizing experience it is - for the young patients (usually but not always boys), for their parents, and also for healthy siblings. A genetic condition, MD attacks the muscles in the body to the point where children are usually in wheelchairs before they reach their teens, and they rarely live much past 20. It's horrible. There's no other way to put it. If you're old enough, you might remember seeing some of the kids on the old Jerry Lewis Labor Day Telethons. Many of them accepted their fates with tremendous grace, but the truth is they deserved much, much better.
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